February 6th 2024 – Two-a-days

Feb 6th

Well, I’m sitting here, in my KAFO’s and had just got done doing some standing exercises for the first time in the afternoon after therapy! Two a days, here we come!

It’s really interesting. I need to keep my focus. Regardless of what I interpret others emotions or intentions to be, I have to remain focused.

I know that others want the best for me, and I know that’s what they say! But the problem is what I see on their faces/ lips/ eyes, and what it means to me. I see how it affects me. But I can’t let that be the end all be all. I need to continue to prevail!

I’ve been wearing the braces for a while, helping keep me straight! I do like reading about how people are saying that increased muscle tone is important, and how it can mean more promising changes are coming. It’s sometimes hard because I am filled with folks who don’t know much about my injury. Besides my therapists, there aren’t too many folks who know anything about this.

I’m doing well! I had a rough start to the day, but I’m doing more everyday! Laid on tum on floor, fucked up the transfer, got the braces on, got standing, and have used this time to stretch!

I want to get up as straight as possible, so I don’t have to use my arms as much!

Maybe I should look into Pilates/ or other types of stretching….

I’m really feeling good, I really know that this is the trickiest time, ever. I’m really trying to distinguish between the feelings of tiredness/ tightness, and the other more distant feelings.

What’s wild is I can really feel my shins, my feet, my quads! They are really going off! It was a good day, just trying to do a lil bit!